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The family had been given a special room in Kingston Hospital (the U.K. hospital where the babies were born) called the Daisy Room. This was a room where families who knew they would be losing a child could go to stay with their baby until the end.
And that was exactly what Millie and Lewis did. They cuddled and loved Skye until the end. Right before she passed, Lewis brought Skye to Callie’s incubator, where he let the sisters lay next to each other right before Skye passed away.
It was this moment, however, that gave her the idea to start the Purple Butterfly stickers. In the NICU, none of the families around the Smiths knew their story – they didn’t know a simple comment could shatter them the way Millie was shattered. She realized that a simple sticker was enough to tell the story, without grieving families actually having to tell the story over and over.

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