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Scarlett was transferred to Orlando, Florida, where she underwent surgery to place a stent in her SVC. The surgery was successful, and just two days later, she was extubated again to CPAP. But our journey wasn’t over yet. On November 9, Scarlett’s heart rate began to climb, and she became unresponsive. Doctors later discovered that she had developed sepsis and was in septic shock. Scarlett remained in a comatose state for several days, and her doctors were unsure whether she would survive. She was reintubated and underwent multiple tests, including an EEG and a CT scan, which revealed significant fluid on her brain. On November 19, Scarlett had a VP shunt placed to drain the excess fluid, but complications arose, requiring another surgery to revise the shunt.
The next few months were filled with ups and downs. Scarlett had lost the use of her arms and legs, and it was unclear whether she would regain movement. But Scarlett is a fighter, and on December 10, 2020, she was successfully extubated to CPAP for the third time. Over the next several months, Scarlett’s progress was nothing short of miraculous. Her CPAP settings were gradually weaned, and on February 15, 2021, she transitioned to a low-flow nasal cannula. Eventually, it was decided that Scarlett would go home on CPAP, allowing her lungs more time to develop at home.
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